Hot damn, it really pisses me off when doctors get all doctorly on me. Below is a message thread between me and Dr. A. When he didn’t respond within the given timeframe, I emailed him again and got a less than satisfactory response from a delegate, Dr. H.
The good news? Dr. H concurs that my FSH was not reliable.
The bad news is that for some reason (which still hasn’t been explained) Dr. A wished me to proceed with Clomid. Annoyingly, my request to have new labs done on CD3 was ignored: I didn’t have enough character space in the message box to say this, but CD3 blood labs will be a couple hundred dollars, compared to my out-of-pocket costs of $1,200 for an HSG + $153 for semen analysis + $1,000 for Clomid. Isn’t it prudent to go with the more cost-effective test that may even eliminate the need for unnecessary, invasive, embarrassing and expensive procedures?
When I was sitting with Dr. A last week, I felt like he was painting a picture of doom and gloom. He gave a little Hmh. when I said I came off the Pill last August — I felt like he immediately drew a negative conclusion, so I pointed out that I conceived quickly, and that some of this past year was taken up with a pregnancy and then my cycle not returning, but maybe he wasn’t listening. I also told him that my stage II endo was on my bladder and in the cul-de-sac and that at the time of my laparoscopy in 2001 my doctors said that my reproductive organs (specifically, my “fallopian tubes are open”) were “unaffected and that [I] shouldn’t have problems conceiving.”
Yet, Dr. A wants me to go on Clomid. His concession was that I could try au naturel for a few months. If, in his medical experience, he thinks that my age, endometriosis, and desire to have a baby makes putting me on Clomid worth it, then… well, okay. I mean, I’ll do what it takes, of course! I just feel like Dr. A wants me to pursue a more aggressive form of treatment that is based on skewed data and nothing more than a negative. Not to mention, it will costs thousands of dollars because none of these tests are covered by my health insurance, not even the prescriptions.
NOT HAPPY.
I think I need to find a new ob/gyn. One with whom I can have a conversation. If you’re in San Diego and love yours, please let me know…
July 30th
Hello Dr. A,
I’ve been doing some reading on FSH levels and it seems most people have theirs tested on Cycle Day 3. My result of 11.7 was done post-miscarriage and before my cycle returned. There was no indication in the results that this is a concern. Is that figure reliable? Should we test again on CD3?
Thank you.
August 7th
Hi Dr. A,
I don’t know if you received my message from last Tuesday, but I would like to have my FSH and other hormone bloodwork done on the third day of my cycle. (The results you saw were from 5/20/13, about 2-3 days before I ovulated–surely my FSH would have been at its highest then?)
I’d be grateful if you would put the order in the system. If I don’t hear from you I will follow up by phone.
Thanks!
Lauren
August 8th
Good morning Lauren,
I apologize for the delay in replying. I had sworn that I had replied to you earlier, but I guess I had not. My name is Dr. H and I am Dr. A’s oncoming fellow.
I see your blood work and results. I do no believe that those labs actually need repeating. Even with those results, it appears that we will be proceeding with Clomid trials. Since this is the lowest form of stimulation, repeating your Day 3 labs would not change our management. You are correct that your cycle day ~26 or so [ed: CD26? more like CD12!] would not be the correct values, however in your case repeating them is not necessary.
Please let me know if you need anything else. This was the plan from Dr. A’s notes:
HSG and Semen analysis, AMH
The AMH and HSG have been ordered for you. Please call radiology for the HSG and go to any UCSD lab to have the AMH drawn and let us know when the analysis is complete.
Take Care,
Dr. H
August 8th
Hi Dr. H,
Thanks for your response. Unfortunately, I remain confused.
1) Since you confirm the results are “not . . . the correct values,” why do they not require repeating?
2) Given these incorrect FSH results, what else about my case leads you to continue with your proposed Clomid trials (i.e. on what other data are you basing your decision)?
3) Could you please put in an order for an FSH test anyway?
Thank you!
Lauren
UPDATE
Dr. H just called me. He didn’t have the whole picture and had understood that I wished to proceed with fertility treatment. I explained to him how I thought Dr. A may have understandably assumed that my FSH test was done on CD3 and based his recommendation for Clomid purely on that. Furthermore, Dr. H was of the understanding that I had had trouble conceiving (no I didn’t, I told him, the first cycle we tried where I wasn’t sick and we timed intercourse perfectly, I got knocked up!) and had experienced infertility for 6 months (uh, no, I corrected, mine was a missed miscarriage that lasted 3 weeks, after which my cycle didn’t return for 3 months!). I was glad to be able to set him straight. Seems like proceeding with Clomid is not necessary at this time. Best news of all, he said that my FSH could only get better by testing on CD3. And, as I requested, there is an order in the system for me to have FSH, AMH, and estradiol tested on CD3.
That is, assuming I didn’t get pregnant this cycle ;) I’m hoping my brush with infertility is nothing more than a scary door I saw begin to open, and close again.
I think the moral of the story is: Stay on top of your medical records. Do your research. Learn how to have a conversation with your doctor. And self-advocate, self-advocate, self-advocate.
J o s e y says
Ugh, I don’t know how it is in your area since you’re in a city, but here the OBs are freaking CLUELESS when it comes to IF stuff. They are educated in pregnancy and birthing babies – not in the GETTING pregnant part. They did my bloodwork on the wrong days (like you) and prescribed clomid as the blanket fix all (like you). It wasn’t until I went to an RE that I got the care I needed. Maybe you need to make the jump to an RE?
Also, generic clomid (clomiphene citrate) cost me about $15, and I have HORRIBLE insurance, so hopefully it will be cheap for you as well!
Lauren says
Come to think of it, this guy was an RE… Yes, and most ObGyn students have never seen a natural birth — no wonder 30% of deliveries in the US end up as a Caesarian…
Good to know there’s a generic version! I hope I won’t need it, but generic works! Xx
redbluebird says
I’m glad you got this sorted out. You are SO right about staying on top of your medical records, doing your research, and advocating strongly for yourself. Several times, I’ve had doctors/nurses tell me all my test results were fine, but when I requested them, I saw things marked as out of normal range. I’ve also had them order the wrong blood tests & not notice.
I know you’re not starting with the Clomid now, but just to let you know, the generic form is actually really cheap. My insurance didn’t cover it and I think I paid around $10 for a 5 day supply of 50 mg. The HSG is pretty expensive though. Hope you get pregnant before you have to worry about any of that!
Della says
Wow, am I glad that you were able to work through the grief and distress that resulted from your appointment with Dr. A. You dug in, you got help, you figured out that the real picture might be very different, and then you spoke up and continued to speak up until you were heard and understood. That was brave and I’m really proud of you.
Catwoman73 says
Sadly, this kind of misunderstanding seems to be the hallmark of modern medical care. As a healthcare professional myself, I see it all the time- miscommunication, incorrect information in charts, conflicting information in charts… it’s terrible. And as an infertility patient myself, I found it to be particularly bad there- my FS never had any idea who I was or why I was there. You absolutely have to be your own advocate. It’s your health, and no one but you can fight for it. Good for you for insisting on doing things the way you want. Managing your fertility is all about regret management- no matter what happens, you don’t want to look back in 20 years and wonder why you didn’t insist on having some test or some procedure done. Keep pushing back, and insisting on doing things your way!!!
Momsicle says
First of all, that sucks!!!! I hate it when doctors make you feel like you are stupid or crazy or mildly out of line. Short of having you up here to see my incredibly wonderful midwife, I would recommend looking for any offices in San Diego that have midwives and doctors practicing alongside each other. My clinic is also associated with high-risk pregnancy specialists. I found the midwives give incredibly wonderful, human, and incredibly knowledgeable advice. And anything they can’t do, they refer to a doctor within the practice. That way you can still see your midwife as your primary woman-doctor-person, but get the advanced medical support of the doctor team. I really hope there’s an office like this near you, and if not, that you get a great recommendation for a super compassionate doctor. XOXOXOOXO!!
Lauren says
Ah! That’s a great idea, to see a midwife — one of the reasons I chose UCSD was because of their midwife program and birthing centre *in* its hospital. I guess I forgot about that by travelling to hell and back. Thanks for the reminder!